Still here

It is getting harder and harder to write these updates, because at times it feels like nobody has any idea of what they are going to do. I am watching my husband get worse and worse, and some days have gone by with nothing being done at all. I will write this update in point form.

• On Monday night, my Sweetie was moved out of the private room and back into a semi-private. The test results for a hospital borne illness came back negative. 
• On Tuesday morning I called patient locating to find out which room he was moved into. His phone was disconnected so there was no way to talk to him. I had that problem sorted out by calling the nurses' station to inform them.
• I drove to the hospital early this afternoon after the freezing drizzle stopped. I asked at the nurses' station if they would send the doctor to the hospital room to speak to me. The nurse came in to talk with me first. She said that my Sweetie was having a very bad day. He was taking pain medication every four hours and he wasn't eating or drinking . Of course, that wasn't new. He hasn't been eating or drinking for two weeks now. She also said that my husband had been given too much Lasix. They could no longer get a working IV  in his arm because his veins were collapsing because there wasn't enough fluid in his veins. It is all interstitial.
• A nephrologist came in to talk with us and announced that he was going to put more IV fluid into him because of the lack of fluid in his veins, and he was going to put a hold on the Lasix. Their plan consisted of putting in even more fluid and then do another biopsy of the kidney this Friday. My husband and I "hit the roof" so to speak. He already has 22 extra pounds in his legs that was put in by IV the first week. That doctor left to confer with the head of Nephrology.
• The nurse came in to try putting in another IV line in my husband's arm to start up the Lasix treatment that he had not yet received today. This order had just been given to her by Internal Medicine. I refused the treatment until both parties (Internal Medicine and Nephrology) got together to discuss a new treatment plan. 
• Within 5 minutes, we had three doctors in the room. I explained that within the first half hour of my arriving to see my husband, he had been prescribed two diametrically opposed courses of treatment. We needed to resolve the issue of not being able to insert an IV port, so it was decided to send him to Radiology to have a PIC line put in his arm so nurses could take blood and give medicine. We also suggested that a dialysis line be put in through the neck like they did back in October to give him dialysis if it was finally decided that that was the only course of action. But Nephrology wouldn't go for that. They want to save the kidney, but my husband has been through enough. 
• I spoke with my Sweetie Pie an hour ago. He said they put the PIC line in his arm after 5 o'clock tonight; and while he was there, the radiologist told him that Nephrology had finally given the go-ahead for the line to be put in his neck tomorrow. I am guessing that dialysis is not completely out of the question. 
• I will end this post with a valentine that I finished this morning.